At Act4Parkinsons™, we believe that every person living with Parkinson’s Disease should have access to high-quality, compassionate care, no matter where they live. That is why we’re excited to share news about a nationwide initiative aimed at setting consistent standards for Parkinson’s Disease Centers across the U.S. Spearheaded by leading neurologists, researchers, and advocacy organizations, this effort aims to ensure that all people living with Parkinson’s receive the care they deserve.
Why Standards Matter
Parkinson’s Disease is complex and progressive, requiring a multifaceted approach across many different disciplines, including neurologists, physical therapists, mental health professionals, and social workers. Yet, care can vary widely from center to center depending on location, resources, and expertise. This new initiative, supported by the National Plan to End Parkinson’s Act, seeks to change that by defining what it means to be a true “Center of Excellence” for Parkinson’s care.
These standards will help ensure that all centers provide:
- Multidisciplinary care teams
- Access to advanced therapies and clinical trials
- Mental health and social support services
- Community education and outreach
- Consistent treatment protocols and patient support services
- Better data collection and research collaboration
A Unified Vision for Parkinson’s Care
The initiative is being driven by a newly formed Federal Advisory Council on Parkinson’s Research, Care, and Services, which includes patients, caregivers, clinicians, researchers, and federal agency representatives. Their goal is to create a framework that improves care delivery, supports families, and accelerates research. This effort is a direct result of the advocacy and awareness work that many organizations like Act4Parkinsons and supporters like you have been championing.
This initiative aligns with the broader goals of the National Plan to End Parkinson’s Act, signed into law in July 2024. The plan calls for a coordinated national strategy to prevent, diagnose, treat, and ultimately cure Parkinson’s Disease and related disorders.
What’s Next?
The Advisory Council is currently working to define the criteria for Parkinson’s centers. While funding for the initiative is still being determined through the federal appropriations process, the momentum is strong. Advocacy groups like the Parkinson’s Foundation and the Michael J. Fox Foundation are actively supporting the effort and encouraging public engagement.
What You Can Do
Whether you’re a healthcare provider, patient, caregiver, or advocate, your voice matters. As these plans unfold, there will be opportunities for public input and community engagement.
Here’s how you can help:
- Stay informed by following updates from Act4Parkinsons™ and national advocacy groups.
- Share your story; your experiences can help shape better care standards.
- Support our mission by donating, volunteering, or spreading the word.
Together, we can help build a future where every person with Parkinson’s receives the care they deserve.