UPDATE 12/14/2023
The House of Representatives passed the National Plan to End Parkinson’s Act!
Tens of thousands of people in the Parkinson’s community helped make our policymakers understand just how critical this legislation is. We’re grateful to the bills’ lead sponsors in the House, Representatives Gus Bilirakis (R-FL) and Paul Tonko (D-NY) for their exceptional leadership in getting this bill passed. We extend our deepest thanks to you and others for the support.
The National Plan to End Parkinson’s Act (H.R. 2365/S. 1064) is bipartisan, no-cost legislation that will create an advisory council comprising members of federal agencies, people living with Parkinson’s, care partners, researchers, clinicians, and other experts.
This bill requires the Department of Health and Human Services (HHS) to carry out a project to prevent and cure Parkinson’s disease (a progressive brain disorder that causes unintended or uncontrollable movements) and related conditions.
Among other components of the project, HHS must
- Implement and periodically update a national plan to coordinate and guide efforts to prevent and cure the disease;
- Improve diagnosis, treatment, and care of those with the disease;
- Address health and other disparities related to the disease. HHS must also conduct annual assessments on the preparation for and response to the increased burden of Parkinson’s disease.
In addition, the bill establishes a council, comprised of federal and nonfederal stakeholders, to advise HHS on and make recommendations concerning the prevention and cure of Parkinson’s disease.
The bill’s provisions terminate at the end of the calendar year 2035.
According to the House of Representatives Bill: H.R.2365, congress.gov