UPDATE 5/23/2024
Congress passed the National Plan to End Parkinson’s. Now it is on the way to the president’s desk to be signed into law.
Contact your Senator to thank them for caring about doing more for the more than one million Americans who suffer from this disease.
Use the button below to get more information on how to contact your members of Congress and personally thank them for supporting this bipartisan bill.
The National Plan to End Parkinson’s Act (H.R. 2365/S. 1064) is bipartisan, no-cost legislation that will create an advisory council comprising members of federal agencies, people living with Parkinson’s, care partners, researchers, clinicians, and other experts.
This bill requires the Department of Health and Human Services (HHS) to carry out a project to prevent and cure Parkinson’s disease (a progressive brain disorder that causes unintended or uncontrollable movements) and related conditions.
Among other components of the project, HHS must
- Implement and periodically update a national plan to coordinate and guide efforts to prevent and cure the disease;
- Improve diagnosis, treatment, and care of those with the disease;
- Address health and other disparities related to the disease. HHS must also conduct annual assessments on the preparation for and response to the increased burden of Parkinson’s disease.
In addition, the bill establishes a council, comprised of federal and nonfederal stakeholders, to advise HHS on and make recommendations concerning the prevention and cure of Parkinson’s disease.
The bill’s provisions terminate at the end of the calendar year 2035.
According to the Senate Bill: S.1064, congress.gov